Dionna

I am 40 wife and mother of 4 living in Northern California. I have a rare, genetic disorder. It happened in utero while my brain was forming, Neuronal migration disorder of Flna gene and caused Periventricular Nodular Heterotopia, leading to epilepsy, vascular ehlers danlos syndrome, hypermobility, I have cardiovascular issues, and auto immune disease that I'm still getting tests for. I have passed this onto 2 of the 4 of my children and am actually of 3 generations believe it or not am the first one to find out of this genetic disorder. Runs on my mother's side of family and I have many members with epilepsy and passed away from misdiagnosed and undiagnosed, left untreated so I am pushing to see that I will seek the justice to be a voice of all those left without a voice and help find a cure or possible treatment for my family's future and quality of life. I was made RARE for the gift of creating a better version of the most horrible situations I've been through for the gift of my own unique warriors I have created, my precious children and I hope you all have a heart to support our family's health care and I thank you for choosing to read our story. #JnDzMutations